Longitudinal predictors of informant-rated involvement of people with dementia in everyday decision-making

Sabatini, Serena; Martyr, Anthony; Gamble, Laura D.; Collins, Rachel; Matthews, Fiona E.; Morris, Robin G.; Rusted, Jennifer M.; Pentecost, Claire; Quinn, Catherine; Clare, Linda

doi:10.1177/07334648221128558

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Journal article

Longitudinal predictors of informant-rated involvement of people with dementia in everyday decision-making : findings from the IDEAL program

Sabatini, Serena ORCID Faculty of Biomedical Sciences, Università della Svizzera italiana, Switzerland
Martyr, Anthony ORCID Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
Gamble, Laura D. ORCID Population Health Sciences Institute, Newcastle University, Newcastle, UK
Collins, Rachel Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
Matthews, Fiona E. ORCID Population Health Sciences Institute, Newcastle University, Newcastle, UK
Morris, Robin G. Department of Psychology, King’s College London, Institute of Psychiatry, Psychology and Neuroscience, London, UK
Rusted, Jennifer M. ORCID School of Psychology, University of Sussex, Brighton, Brighton, UK
Pentecost, Claire Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
Quinn, Catherine Centre for Applied Dementia Studies, Bradford University, Bradford, UK - Wolfson Centre for Applied Health Research, Bradford, UK
Clare, Linda ORCID Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK

2022

Published in:

Journal of applied gerontology. - 2022, vol. 42, no. 2, p. 290–301

English The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.

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