Longitudinal predictors of informant-rated involvement of people with dementia in everyday decision-making : findings from the IDEAL program
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Sabatini, Serena
ORCID
Faculty of Biomedical Sciences, Università della Svizzera italiana, Switzerland
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Martyr, Anthony
ORCID
Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
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Gamble, Laura D.
ORCID
Population Health Sciences Institute, Newcastle University, Newcastle, UK
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Collins, Rachel
Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
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Matthews, Fiona E.
ORCID
Population Health Sciences Institute, Newcastle University, Newcastle, UK
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Morris, Robin G.
Department of Psychology, King’s College London, Institute of Psychiatry, Psychology and Neuroscience, London, UK
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Rusted, Jennifer M.
ORCID
School of Psychology, University of Sussex, Brighton, Brighton, UK
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Pentecost, Claire
Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
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Quinn, Catherine
Centre for Applied Dementia Studies, Bradford University, Bradford, UK - Wolfson Centre for Applied Health Research, Bradford, UK
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Clare, Linda
ORCID
Centre for Research in Ageing and Cognitive Health, Faculty of Health and Life Sciences, University of Exeter Medical School, Exeter, UK
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Published in:
- Journal of applied gerontology. - 2022, vol. 42, no. 2, p. 290–301
English
The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.
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Medicine
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CC BY
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hybrid
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https://n2t.net/ark:/12658/srd1325634
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